DEANNA Deanna noticed a lump on her clavicle by her neck. The pediatrician ordered blood work and an ultrasound, which came back normal. Deanna was referred to the Oncology department at Lehigh Valley Hospital, which performed a biopsy and diagnosed Hodgkin’s Lymphoma. Last year Deanna completed her fifth cycle of Chemotherapy. A recent GT scan looked clear. However, the lymph node is still enlarged, so radiation was recommended through LVH. Deanna’s parents got a second opinion at CHOP and have decided to hold off on radiation and just keep watch and measurements on the lymph node. Deanna’s dream is of a Disney Cruise in December.
ABBY Abby was diagnosed with Leukemia after months of fever and malaise. Chemotherapy was started. She is doing well. Her beautiful long black hair is just coming back in. She has chemo every week. She goes in early May for an update and decisions for her Maintenance program, which is likely 2 years.
CLARA was diagnosed with a large mass (brain tumor) on her 4th ventricle at 20 months old. It was removed a week after discovery. After surgery she received proton beam radiation. She is currently stable. She has an obsession with princesses so her only request for a dream was to go to Cinderella’s castle in Disneyworld.
JACOB Jacob suffers from Spina Bifida Myelomeningocele and hydrocephalus and is currently in good health. His parents maintain his bowellbladder health with recommended programs. His ADHS is monitored by doctors and maintained with medication. He is not currently wearing braces on his legs but has in the past and will most likely again in the future. His dream was to visit Universal especial the Harry Potter experience.
GARRETT Garrett was diagnosed with Acute Lymphoblastic Leukemia (ALL) at the age of seven. He is a little over half way through his 3 1⁄2 year treatment plan. He loves the Youtuber Dude Perfect Guys. Garrett traveled to Texas to spend time with the cast of Dude Perfect and even beat one of them in the bottle toss.
LILY is a sweet 7 year old diagnosed with Leukemia. Her dream was to visit Atlantis at Paradise Island in the Bahamas. Her dream was fulfilled June 2019 where she also swam with the dolphins!
JEAN CARLOS diagnosed with Mitochondrial Encephalopathy. He depends on nurses and his mom for his daily needs. His dream of Disneyworld was fulfilled September 2019.
JAHREL was diagnosed Crohn’s Disease and Brain Lesions. Jahrel has spent much time in the hospital and was thrilled to have his Disney Cruise dream fulfilled!
MARIE diagnosed with Leukemia. Her dream of Disneyworld was fulfilled September 2019!!
MICHAEL has Sickel Cell his mother passed away from the same illness. Michael’s dream of Disneyworld was fulfilled accompanied by his grandmother and family!
SILAS has Leukemia. Silas had a unique dream. His dream was to attend a magic show in Las Vegas and visit the Grand Canyon. Thanks to the kindness of the LV Mens Baseball League who raised fund to help with his dream AND to Grand Canyon West who so graciously made Silas visit to the Skywalk and Grand Canyon so much more special!
EVIE’S dream of a Disney Cruise was fulfilled November 2019. She suffers from Amplified Musculoskeletal Pain and IBD
WILL also is diagnosed with Leukemia. He has such a great personality you can’t help but love him! His dream of Disneyworld was fulfilled in November 2019 where he got to attend the Mickey’s Christmas Party.
CLARA diagnosed with a brain tumor wanted to meet Cinderella at her castle. Her dream of Disneyworld was fulfilled December 2019!